After finding out that my residual disease had returned in October, the hospital visits have returned with a vengeance - my donor lymphocyte infusions have started up again and I had to have another bone marrow biopsy in November (2 months earlier than normal). I had a clinic visit just before Christmas and I was expecting my biopsy results...

Well - it seems that my marrow samples are sent off to a lab in London and tested against a sample taken in 2015 before I started any treatment. I was pretty sick back then and my very first biopsy only yielded a small amount of marrow sample - it was very dry and powdery and marrow should be gungy. The upshot is that there is no original marrow sample left to test against and they were unable to tell me whether the residual disease has gone or not! There are other tests that can be done but they are not as accurate and give less warning of a potential relapse. I’m not sure how I feel about that but I try not to worry about things that I have no control over.

On top of all that, I found a lump in my neck on Boxing Day - my GP thought it could be a swollen lymph node but advised to me to check with the hospital. I saw my specialist the next day and she thought the same but couldn’t confirm it so sent me off for some blood tests. I’ve tested positive for glandular fever so they are keeping a very close eye on me at the moment - I’ve had 4 hospital visits since Christmas and it’s only the middle of January! I don’t feel too bad apart from a sore throat and some fatigue so have been taking it easy wherever possible.

On the plus side, I had a lovely Christmas Day with friends and lots of good food and I managed to squeeze in a couple of trips to London in December too. We went up to Wembley to see Andre Rieu and his orchestra on 22nd and had an absolutely wonderful time - I think it will become an annual trip for us. And one of my buddies from the Wessex Cancer Support Centre was sitting 2 rows behind us! I also attended the Wessex Mulled Wine (non-alcoholic) and Mince Pies event - I don’t like mincemeat but the stollen bites were delicious...